Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body.
The disease typically begins with nosebleeds during childhood, and can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
Cure HHT Canada is a charity that is committed to supporting individuals and families affected by hereditary hemorrhagic telangiectasia (HHT). By raising funds for HHT research and to advance the care of this disease, our aim is to become a hub for HHT awareness and education across Canada. We invite you to browse our site to learn more about HHT and the care that is available in Canada. This site contains information for Canadians with HHT, concerned family members and clinicians involved in the care of patients with HHT.
June is HHT awareness Month
June is HHT Awareness Month
For individuals and families affected by Hereditary Hemorrhagic Telangiectasia (HHT), awareness and support are vital. June is our opportunity to come together, share our experiences, and educate others about this often-underdiagnosed condition. Explore resources, connect with the community, and find out how you can help amplify the voices of those living with HHT.
Every year on June 23 — and throughout the month of June — local, state, federal, and national organizations come together to shed light on the impact of HHT and to show support for those at living with and caring for those with HHT.
This year’s theme, “Beyond the Visible,” focuses on shining a light on those living with the unseen challenges that come with HHT. As we observe the our annual awareness campaign, this theme reminds us of how far we’ve come and the work still ahead to diagnose, treat, and improve the quality of life for HHT patients. By working together, we can create a better future.
