Jane Wace has been part of the arts community since childhood and ran her own business for 30 years. She has dedicated her time to serving on various community boards in Vancouver, consistently working to support their development and growth. Diagnosed with HHT as a young adult, she also sees her son affected by it. Jane values the advances in HHT research and appreciates those working towards a cure. She is thankful to be involved with Cure HHT Canada and hopes to inspire others to support this cause.

Donald Hutchinson is a nurse practitioner who works in a remote fly in community in northern Ontario. As a child, he always remembers having nose bleeds and seeing others in his familywith the same condition. It was not thought to be serious. He was the first to be diagnosed with HHT in his family in his late twenties. Sadly, at that time, there were no screening protocols to identify those affected by HHT and its accompanying significant vascular malformations. He lost a sister at a young age to complications of a cerebral HHT related arterial venous malformation. Looking back, he sees other generations that were affected at a time when it was not known that it was a genetic condition. He has a son with HHT and is grateful for the continuing development of knowledge and expertise in the treatment of this disorder. As a beneficiary of these advances, he is a committed supporter of continuing to support research awareness and treatment for excellence in HHT care.

Izabela Veljkovic is a fourth-year Health Sciences student passionate about pursuing a career in medicine and making a lasting impact on the HHT community. Her mother and sister have been diagnosed with HHT and having seen the impact of the disease on her family, Izabela brings a personal perspective to her advocacy. She is committed to advancing research, raising awareness, and supporting efforts toward a cure. Her lived experience fuels her determination to improve outcomes for others, and she is honoured to contribute to this important mission.

Kris Li holds an Honours BSc. from the University of Toronto in Pharmacology and Physiology and, has over 3 years of experience in the pharmaceutical industry working on clinical trials, with a focus on Phase 2/3 trial operations. She has had the privilege of working on 50+ trials throughout her career across many therapeutic areas, although her true passion lies in finding new treatments for rare diseases and advancing patient access to care. Kris currently lives in Toronto, ON with her cat, although she grew up in Vancouver, BC. In her free time, she enjoys swimming, skiing, painting and yoga.

Dr. Marie E. Faughnan is a Respirologist and an Associate Scientist in the Li Ka Shing Knowledge Institute of St. Michael’s Hospital. She is an Associate Professor at the University of Toronto. Dr. Faughnan is a clinical epidemiologist, with a research focus on clinical and mechanistic aspects of vascular malformations, with a specific expertise in hereditary hemorrhagic telangiectasia (HHT). Dr. Faughnan is the Director of the Toronto Hereditary Hemorrhagic Telangiectasia Centre and the Scientific Director for CureHHT. Dr. Faughnan has also led the development and publication of the first International HHT Guidelines.