Discover HHT

Hereditary Hemorrhagic Telangiectasia (HHT) is a rare blood vessel disorder that can cause random and recurrent bleeds.
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The disorder is inherited, meaning it is passed down from parent to child. HHT patients can develop abnormal blood vessels in the face, lips, mouth, nostrils and hands, called telangiectasias. These lesions can bleed quite severely; in fact, nostril telangiectasias cause those infamous nose bleeds most patients experience. Those with HHT can also develop abnormal blood vessels in organs, called arteriovenous malformations (AVMs). These can occur in the lungs, brain, liver, gastro-intestinal tract and spine. The best defence against HHT is regular visits to an HHT centre of excellence for diagnostic screening, which allow a better understanding of how the disease is manifesting in you. Scroll down and click on the icons below to learn more about HHT.