RESEARCH

We are so much more than a patient advocacy organization – we are a force for scientific progress. Our foundation has worked tirelessly to grow a research community focused on HHT and to invest in the groundbreaking work leading to discoveries. All of these efforts are aimed at improving outcomes for individuals affected by HHT.

Explore HHT Research

HHT Guidelines

Review the Second International HHT Guidelines for the Diagnosis and Management of HHT, published in the Annals of Internal Medicine.

Diagnostic Criteria

Learn about the clinical diagnostic criteria for HHT.

Signs & Symptoms

Symptoms of HHT vary greatly, even within a family. Discover common signs and symptoms of HHT.

Screening

There are several tests available for known or suspected cases of HHT. Learn about screening criteria for different types of HHT.

Treatment

Most types of telangiectases can be treated once they are detected. Discover the various treatment methods available.

Genetic Testing

Genetic testing is available for any suspected or clinically diagnosed HHT patient. Find testing locations and info.

HHT Brochure

Access our printable HHT brochure, which includes critical information about HHT and includes resources for testing and treatment.

HHT Outcomes Registry

Learn about the HHT Outcomes Registry, which contains detailed clinical information and follows patients through the course of their diseases.